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PostPosted: Wed Jun 13, 2018 8:52 pm 
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Location: West Caldwell, NJ
Hey Guys.

My family is gearing up to head to Western NY next month for the Annual Hunters Hope Medical and Family Symposium.

This will be our 6th consecutive year attending this "family reunion" of over 50 Leukodystrophy families. Its an amazing week that ends with our fundraiser walk on July 20th.

Hunters Hope has helped my family in many ways over our 8 year journey of fighting Metachromatic Leukodystrophy (MLD).

We have had a great run of raising funds for this amazing organization. We have been the top fundraising team 4 of the past 5 symposiums! Its all because of the amazing donors we have had over the past 5 years.

I know everyone has different financial situations, but if you are feeling charitable, please click on the following link to make a tax-deductible donation to our team.

https://www.classy.org/team/164689

For more information on Hunter's Hope: http://www.huntershope.org

Thanks in advance!!

With love and hope.

Mel, Lina, Salvatore and Giovanni
The Sereno Warriors

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PostPosted: Sat Jun 16, 2018 8:03 am 
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Joined: Tue Jan 12, 2010 9:41 am
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This is a GREAT cause, and I encourage everyone to try to donate $25 or more to help.

*bump*

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PostPosted: Thu Jun 28, 2018 9:50 pm 
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Big Dave wrote:
This is a GREAT cause, and I encourage everyone to try to donate $25 or more to help.

*bump*



Thanks Dave!!!

We are just about 3 weeks from the walk and we have reached 28% of our fundraising goal.

Thanks to those that have made a donation!

Any amount donated will be greatly appreciated.

If you haven't yet there is still time to make your tax deductible donation at:

https://www.classy.org/team/164689

For more information on Hunter's Hope: http://www.huntershope.org

As a side note, this will be the 20th Anniversary of the Symposium and with Jim Kelly receiving an ESPY for his battle with cancer on the same night the symposium begins, its going to be an emotional night on July 18th!

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PostPosted: Fri Jun 29, 2018 5:17 am 
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Mel, can you donate with Paypal?

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PostPosted: Fri Jun 29, 2018 10:19 pm 
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Dave, unfortunately, PayPal is not one of the payment options. The standard credit card payments with Visa, MasterCard, AMEX and Discover are the only options.

I'll talk them to see about accepting PayPal payments in the future.

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PostPosted: Wed Jul 18, 2018 9:17 pm 
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For those that didn’t see Jim Kelly’s speech at the ESPY’s. Here is the link. I am one of the 60 families that he mentioned.

https://es.pn/2NsYzaC


Our walk is this Friday. Please think about making a donation to my team.

The link to our team fundraising page is in the original post.

Thanks to everyone that made a donation already.


Sent from my iPhone using Tapatalk

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PostPosted: Mon Jul 23, 2018 5:03 pm 
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I just wanted to thank every person who donated to our team! We were the top fundraising team for the 4th straight year and 5 of the last 6. This year we raised $7,321 beating our best of $7,247 from last year! Here are a few pictures. Enjoy!

Family Portrait
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Me and Sal
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Sal and Jim Kelly
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Me, Sal and Jim Kelly
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Me and my boys in the pool
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Sent from my iPhone using Tapatalk

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PostPosted: Mon Jul 23, 2018 7:55 pm 
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Awesome pics. Props to you and your family.


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PostPosted: Mon Jul 23, 2018 8:04 pm 
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I wish I had seen this earlier

I hope WNY treated you well. You and your family are in my thoughts. I love the pics


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PostPosted: Mon Jul 23, 2018 8:30 pm 
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Actually, you can still donate. I think. Hope it went through


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PostPosted: Mon Jul 23, 2018 10:49 pm 
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DrLecter wrote:
Actually, you can still donate. I think. Hope it went through


Thanks Doc!! Saw your donation go thru. My wife and I were wondering who it was from!

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PostPosted: Tue Jul 24, 2018 9:31 am 
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Looks like a great event Mel.


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